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Differences in Child Opportunity Index for pediatric patients who travel for subspecialty colorectal care: A Pediatric Colorectal and Pelvic Learning Consortium (PCPLC) Study

This study of the Pediatric Colorectal and Pelvic Learning Consortium registry reveals that pediatric patients traveling over 50 miles for subspecialty colorectal care are significantly more likely to reside in low-opportunity, moderate-opportunity, and rural neighborhoods compared to non-traveling patients, highlighting the need for targeted resource support to mitigate healthcare disparities.

Original authors: Kate McNevin, Paul McClure, Kelly Austin, Jeffrey R Avansino, Samuel E Rice-Townsend, Andrea Badillo, Casey M Calkins, Rachel C Crady, David Darcy, Belinda H Dickie, Megan M Durham, Julia E Grabowski
Published 2026-09-08
📖 5 min read🧠 Deep dive

Original authors: Kate McNevin, Paul McClure, Kelly Austin, Jeffrey R Avansino, Samuel E Rice-Townsend, Andrea Badillo, Casey M Calkins, Rachel C Crady, David Darcy, Belinda H Dickie, Megan M Durham, Julia E Grabowski, Jamie C Harris, Ankur Rana, Ron W Reeder, Rebecca M Rentea, Michael D Rollins, Payam Saadai, Hira Ahmad, K. Elizabeth Speck, Cristine S Velazco, Richard J Wood, Caitlin A Smith

Original paper licensed under CC BY 4.0 (https://creativecommons.org/licenses/by/4.0/). This is an AI-generated explanation of the paper below. It is not written or endorsed by the authors. For technical accuracy, refer to the original paper. Read full disclaimer

For many children with complex bowel conditions, the path to healing begins not in a hospital room, but in a neighborhood. The quality of that neighborhood—specifically the schools, parks, grocery stores, and job opportunities nearby—plays a quiet but powerful role in a child's health. Researchers measure this quality using a tool called the Child Opportunity Index, which ranks communities from very low to very high based on the resources available to the children who live there. When a child needs specialized surgery for colorectal or pelvic issues, they often must travel to one of a few dozen expert centers across the United States. This journey can be long and difficult, and it is well understood that families with fewer resources face greater hurdles in accessing care. The question remains, however, whether the distance a family must travel is simply a matter of geography, or if it is deeply tied to the economic and social landscape of their home.

A large team of researchers from twenty-five pediatric centers across the country set out to examine this connection. They looked at data from more than six thousand children who had received specialized colorectal care at these centers between 2017 and 2026. The team divided these families into two groups: those who lived within fifty miles of their hospital and those who had to travel farther. They then matched each family's home address to the Child Opportunity Index of their neighborhood to see if the distance traveled correlated with the resources available at home. The results revealed a clear pattern. Families who did not have to travel far were more likely to live in neighborhoods with either very high resources or very low resources, reflecting the diverse urban areas where these major hospitals are often located. In contrast, the families who traveled the farthest were disproportionately from neighborhoods with low or moderate resources.

The study found that nearly forty percent of the children in the study had to travel more than fifty miles for their care. Among those who traveled, almost forty percent came from rural areas, compared to less than ten percent of those who did not travel. When looking at the quality of their neighborhoods, the travelers were significantly more likely to come from areas ranked as low or moderate in opportunity. Specifically, about twenty-one point seven percent of the travelers came from low-opportunity neighborhoods, and nearly twenty-six point nine percent came from moderate-opportunity neighborhoods. By comparison, families who stayed local were more likely to live in the very high-opportunity neighborhoods, where nearly twenty-eight point two percent of them resided. The data also showed that the travelers were less likely to be Black or Hispanic than the local group, a difference the researchers attribute to the fact that many of these specialty centers are located in diverse cities, meaning local patients naturally reflect that urban diversity, while those traveling from afar often come from less diverse, more rural, or under-resourced areas.

These findings suggest that the burden of travel falls heaviest on families who already face the most significant challenges. A family living in a neighborhood with limited resources often struggles with the costs of transportation, the need to take time off work, and the difficulty of arranging follow-up care. When a child must travel hundreds of miles for treatment, these logistical and financial strains can become overwhelming barriers. The researchers noted that while they could not track exactly how families traveled or what specific financial hardships they faced, the link between long-distance travel and living in a low-opportunity neighborhood is strong. The study does not claim that families in low-opportunity areas do not travel; rather, it shows that among the children who do make it to these centers, the ones who traveled the farthest are the ones most likely to come from places with fewer resources.

The authors point out that this pattern highlights a gap in the healthcare system. Children in rural areas or in neighborhoods with fewer resources are not just traveling farther; they are navigating a system that is harder to reach. The study concludes that to ensure fair access to care, hospitals and healthcare systems need to actively screen for these social challenges. By identifying families who are struggling with the distance and the cost of care, medical teams can connect them with social workers, transportation assistance, and financial aid. The goal is not just to treat the medical condition, but to remove the barriers that prevent the most vulnerable families from getting the specialized help their children need. This approach, the researchers argue, is essential for closing the gap in health outcomes between different communities.

A scientific accuracy reviewer checked the draft against the paper and flagged these problems:

  • Claims 22% of travelers were from low-opportunity neighborhoods; paper states 21.7%. (the paper says: "Patients who traveled were more likely to be from low-COI (21.7% vs 15.8%)")
  • Claims 27% of travelers were from moderate-opportunity neighborhoods; paper states 26.9%. (the paper says: "moderate-COI (26.9% vs 20.7%)")
  • Claims 30% of local patients were from very high-opportunity neighborhoods; paper states 28.2%. (the paper says: "very high-COI neighborhoods (28.2% vs 18.3%)")

Produce a corrected version of the draft. Fix ONLY what the reviewer flagged (verify each point against the paper) and keep everything else — the register, the structure, the wording — unchanged. Output ONLY the corrected explanation.

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